« Previous
Next »
Ambulatory Pediatrics
Volume 7, Issue 5
, Pages 374-382
, September 2007
Cross-cultural Development of a Child Health Care Questionnaire on Satisfaction, Utilization, and Needs
References
- . Building systems of care for children with chronic health conditions. Rehabil Psychol. 2003;48:242–249
- . Families’ recommendations for improving services for children with chronic conditions. Arch Pediatr Adolesc Med. 1998;152:440–448
- Quality measures for children’s health care. Pediatrics. 2004;113:199–209
- Parents’ perceptions of primary care: measuring parents’ experiences of pediatric primary care quality. Pediatrics. 2001;108:264–270
- . Measuring quality of care for vulnerable children: challenges and conceptualizations of a pediatric outcome measure of quality. Am J Med Qual. 2000;15:182–188
- Conceptual frameworks for health systems performance: a quest for effectiveness, quality and improvement. Int J Qual Health Care. 2003;15:377–398
- Kelley E, Hurst J. Health Care Quality Indicators Project: Conceptual Framework Paper. Organization for Economic Co-operation and Development. OECD, 2006. OECD Health Working Papers, No 23.
- . Assessing quality of life of children with chronic health conditions and disabilities: a European approach. Int J Rehabil Res. 2002;25:197–206
- . The DISABKIDS Manual. Lengerich, Germany: Papst Science Publishers; 2006;
- Determinants of children’s health care use: an investigation of psychosocial factors. Med Care. 1993;31:767–783
- . An Introduction to Quality Assurance in Health Care. Oxford, England: Oxford University Press; 2003;
- . Health care services received by children by children with chronic illness. Am J Dis Child. 1983;137:225–230
- Racial and ethnic disparities in access to care for children with special health care needs. Ambul Pediatr. 2002;2:247–254
- . Family centered-caregiving and well-being of parents of children with disabilities: linking process to outcome. J Pediatr Psychol. 1999;24:41–53
- . Using existing population-based data sets to measure the American Academy of Pediatrics definition of medical home for all children and children with special health care needs. Pediatrics. 2004;113:1529–1537
- . The accessibility of general NHS services for children with disabilities. Child Care Health Dev. 2005;31:275–282
- . Stress and Coping in Families Caring for a Child with Severe Mental Handicap: A Longitudinal Study. Canterbury, England: Institute of Social and Applied Psychology and Centre for Health Services Studies, University of Kent; 1989;
- . Unmet health care needs and impact on families with children with disabilities in Germany. Ambul Pediatr. 2003;3:74–81
- . Interpersonal aspects of care-giving and client outcomes: a review of the literature. Amb Child Health. 1996;2:151–160
- Framework for identifying children who have chronic conditions: the case for a new definition. J Pediatr. 1993;122:342–347
- . Service needs of families of children with severe physical disability. Child Care Health Dev. 1992;18:259–282
- . Parents’ needs for knowledge concerning the medical diagnosis of their children. J Child Health Care. 2002;6:245–257
- . Parents’ perspectives of health-care delivery to their chronically ill children during school. Int J Nurs Pract. 2002;8:297–304
- Continuity of care is associated with well-coordinated care. Ambul Pediatr. 2003;3:82–86
- . Parent satisfaction with children’s medical care. Med Care. 1986;24:209–215
- . Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings. Child Health Care. 1991;20:170–178
- . The needs of parents with chronically sick children: a literature review. J Adv Nurs. 2001;36:600–607
- Health-related quality of life and patient reports about care outcomes in a multidisciplinary hospital intervention. Ann Behav Med. 2006;31:173–178
- . Cross-cultural adaption of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol. 1993;46:1417–1432
- . The use of patient perceptions in the evaluation of health-care delivery systems. Med Care. 1997;35:NS58–NS68
- . 32. A Windows Software for Estimating Rasch Models, Latent Class Models and Hybrid Models. [computer program] Kiel: IPN; 1999;
- . Functional status II(R) (A measure of child health status). Med Care. 1990;28:1041–1055
- Using the Strengths and Difficulties Questionnaire (SDQ) to screen for child psychiatric disorders in a community sample. Int Rev Psychiatry. 2003;15:166–172
- . Shared vision: concordance among fathers, mothers, and pediatricians about unmet needs of children with chronic health conditions. Pediatrics. 2000;105:277–281
- Measuring consumer experiences with primary care. Pediatrics. 2000;105:998–1003
- The national survey of children with special health care needs. Ambul Pediatr. 2002;2:29–37
- . CAHPS 2.0H Child Survey with Children with Special Health Care Needs (CSHCN) Module: Measure Work-Up. Washington, DC: NCQA Committee on Performance Measurement; 2000;
- . Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers. Pediatrics. 2002;114:e477–e482
- . Parents’ priorities and satisfaction with acute pediatric care. Arch Pediatr Adolesc Med. 2005;159:127–131
- . Listening to families: first steps toward improved hospital care. Arch Pediatr Adolesc Med. 2005;159:187–188
- . Development and evaluation of a satisfaction scale for parents of children with special health care needs. Pediatrics. 1999;104:1182–1191
- . The performance of the screener to identify children with special health care needs in a European sample of children with chronic conditions. Eur J Pediatr. 2004;163:517–523
- Evaluation of the built environment at a children’s convalescent hospital: development of the pediatric quality of life inventory parent and staff satisfaction measures for pediatric health care facilities. J Dev Behav Pediatr. 2004;25:10–19
- Demography of pediatric primary care in Europe: delivery of care and training. Pediatrics. 2002;109:788–796
The DISABKIDS Group comprises a coordinating group (Monika Bullinger, Silke Schmidt, Corinna Petersen) and study centers in 7 countries: Michael Quittan, Othmar Schuhfried (Austria); Marie Claude Simeoni, David Debensasson (France); Ute Thyen, Esther Müller-Godeffroy (Germany); Athanasios Vidalis, John Tsanakas, Elpis Hatziagorou, Paraskevi Karagianni (Greece); Hendrik Koopmann, Rolanda Baars (the Netherlands); John Chaplin (Sweden); Mick Power, Clare Atherton, Peter Hoare (United Kingdom).
PII: S1530-1567(07)00082-2
doi: 10.1016/j.ambp.2007.04.007
© 2007 Ambulatory Pediatric Association. Published by Elsevier Inc. All rights reserved.
« Previous
Next »
Ambulatory Pediatrics
Volume 7, Issue 5
, Pages 374-382
, September 2007
