Ambulatory Pediatrics
Volume 4, Issue 4 , Pages 353-357 , July 2004

Measuring Child Health: Scientific Questions, Challenges, and Recommendations

  • Dennis Drotar, PhD

      Affiliations

    • Corresponding Author InformationAddress correspondence to Dennis Drotar, PhD, Department of Pediatrics, Rainbow Babies and Children's Hospital, 11100 Euclid Ave, Cleveland, OH 44106-6038

REFERENCES 

  1. In: Drotar D editors. Measuring Health-Related Quality of Life in Children and Adolescents: Implications for Research and Practice . Mahwah, NJ: Lawrence Erlbaum; 1998;
  2. Eiser CE , Morse R . Quality of life measures in chronic disease of childhood . Health Tech Ass . 2001;5:1–158
  3. Eiser CE , Morse R . The measurement of quality of life in children: past and future perspectives . J Dev Behav Pediatr . 2001;6:393–406
  4. Starfield B , Riley A . Profiling health and illness in children and adults . In: Drotar D editors. Measuring Health-Related Quality of Life in Children and Adolescents . Mahwah, NJ: Lawrence Erlbaum; 1998;p. 85–104
  5. Stein REK , Jessop DJ . Functional Status II (R): a measure of child health status . Med Care . 1990;28:1041–1055
  6. Walker S , Rosser R . Quality of Life Assessment and Applications . London: MTP Press/Kluwer; 1988;
  7. Pal DK . Quality of life assessment in children: a review of conceptual and methodological issues. I. Multidimensional health status measures . J Epidemiol Community Health . 1996;50:391–396
  8. Feeny D , Furlong W , Barr RD , et al.   A comprehensive multi attribute system for classifying the health status of survivors of childhood cancer . J Clin Oncol . 1992;10:923–928
  9. Kaplan RM . Implications of quality of life assessment in public policy for adolescent health . In: Drotar D editors. Measuring Health-Related Quality of Life in Children and Adolescents . Mahwah, NJ: Lawrence Erlbaum; 1998;p. 63–84
  10. Drotar D . Validating measures of pediatric health status, functional status, and health-related quality of life: key methodological challenges and strategies . Ambul Pediatr . 2004;4(suppl):358–364
  11. Stein REK . Measurement of children's health . Ambul Pediatr . 2004;4(suppl):365–370
  12. Hambleton RK , Swaminathan H , Rogers HT . Fundamentals of Item Response Theory . Newbury Park, Calif: Sage; 1991;
  13. Ware JR . Conceptualization and measurement of health-related quality of life: comments on an evolving field . Arch Phys Med Rehabil . 2002;83(suppl 2):51–59
  14. Rogosa D , Brandt D , Zimonowski M . A growth curve approach to the measurement of change . Psychol Bull . 1982;92:726–748
  15. Riley AW . Evidence on the capacity of children to report for themselves . Ambul Pediatr . 2004;4(suppl):371–376
  16. Korfmacher J. Children's ability to self-report: a view from developmental research Commentary presented at: Measuring Child Health, American Academy of Pediatrics, Genentech Foundation; March 2003; Chicago, Ill
  17. Rebok G , Riley AW , Forrest C , et al.   Elementary school-aged children's reports of their health: a cognitive interviewing study . Qual Life Res . 2001;10:59–70
  18. Olson LM . Measuring health status and quality of life for US children: relationship to race, ethnicity, and income status . Ambul Pediatr . 2004;4(suppl):377–386
  19. Morales LS, Johnson TP. Measuring health status and quality of life in children: relationship to race, ethnicity, and income status Commentary presented at: Measuring Child Health, American Academy of Pediatrics and Genentech Foundation; March 2003; Chicago, Ill
  20. Weech-Maldonado R , Weidmer B , Morales LS , Hays RD . Cross-cultural adaptation of survey instruments: the CAHPS® experience . In: Cynamon ML , Kulka RA editor. Seventh Conference on Health Survey Research Methods . Hyattsville, MD: DHSS Publication (PHS); 2001;p. 75–82
  21. Burgess E , Drotar D , Taylor HG , et al.   The Family Burden of Injury Interview (FBII): reliability and validity studies . J Head Trauma Rehabil . 1999;14:394–405
  22. Bollen KA . Structural equations with content variables . New York: Wiley; 1989;
  23. Topolski TD , Edwards TC , Patrick DL . Toward youth self-report of health and quality of life in population monitoring . Ambul Pediatr . 2004;4(suppl):387–394
  24. Starfield B. Use of measures in surveillance: a measured view of health Commentary presented at: Measuring Child Health, American Academy of Pediatrics, Genentech Foundation; March 2003; Chicago, Ill
  25. Eiser C . Use of QOL measures in clinical trials . Ambul Pediatr . 2004;4(suppl):395–399
  26. Timmerman AA , Antenosis LJC , Meesters CHG . Response shift bias and parent reported quality of life in children with otitis media . Arch Otolaryngol Head Neck Surg . 2003;129:987–991
  27. Kaplan RM. Measuring HRQOL in clinical trials Commentary presented at: Measuring Child Health, American Academy of Pediatrics and Genentech Foundation; March 2003; Chicago, Ill
  28. Nunnally JC , Bernstein IH . Psychometric Theory . 3rd ed.. New York: McGraw-Hill; 1994;
  29. Ramsey SD , Berry K , Etzioni R , et al.   Cost effectiveness of lung-volume-reduction surgery for patients with severe emphysema . N Engl J Med . 2003;348:2092–2102
  30. Gold MR . Cost-Effectiveness in Health and Medicine . New York: Oxford University Press; 1996;
  31. Drotar D , Levi R , Palermo T , et al.   Clinical applications of health related quality of life assessment for children and adolescents . In: Drotar D editors. Measuring Health-Related Quality of Life in Children and Adolescents: Implications for Research and Practice . Mahwah, NJ: Lawrence Erlbaum; 1998;p. 331–341
  32. Goldberg MJ. Health related quality of life measurement in pediatric clinical practice Commentary presented at: Measuring Child Health, American Academy of Pediatrics and Genentech Foundation; March 2003; Chicago, Ill

PII: S1530-1567(05)60324-3

doi: 10.1367/1539-4409(2004)4<353:MCHSQC>2.0.CO;2

Ambulatory Pediatrics
Volume 4, Issue 4 , Pages 353-357 , July 2004

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